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Hospice FAQ

What is hospice care?
Hospice care is end of life comfort care. Hospice is a way of caring for patients in the advanced stages of a life-limiting illness. Hospice care focuses on the patient’s quality of life and provides patients and family members comfort and support. The goal of hospice care is to provide superior pain and symptom management so that patients can spend their last days living in a dignified manner that is most meaningful to them.

Who is eligible to receive hospice care?

Anyone who, according to their physician, has a life expectancy measured in months rather than years. Patients may be adults with a prognosis of six months or less if the disease runs its normal course, patients/families electing palliative care or patients not responding to curative measures. Anyone can make a referral for hospice care.

Who pays for hospice?
Medicare, Medicaid and most Private Insurance companies provide hospice benefits, including the cost of all medications and medical supplies related to the hospice diagnosis. Typically, patients and families experience no additional out-of-pocket costs to receive hospice services.

Who provides hospice care?
Hospice care is provided by teams of specially trained professionals and volunteers. Hospice care teams include nurse case managers, certified hospice aides, social workers, chaplains, grief/bereavement counselors and volunteers. On-call teams are available around the clock to answer questions, offer advice or to make necessary visits to the patients’ homes or care facilities.

Who benefits from hospice care?
Hospice helps those who are terminally ill and their families too. Hospice helps a person find peace of mind, provides guidance on living with an illness and assists with caring for someone who is ill or frail. Hospice also provides grief support and counseling to help family members cope with a loss.

Is respite care available?
Yes, hospice agencies offer short-term respite care to give a break to the regular caregiver.

Is family support offered?
Hospice agencies offer grief support groups, teaching families how to deal with grief and mourning. They provide family members an opportunity to share their grief and speak with others who have experienced similar losses.

Can I change my mind after starting services?
Hospice services can be stopped at any time by revoking your hospice election. You could restart hospice care later down the road.

Is there a time limit for services?
Patient can stay on hospice for as long as the patient continues to be eligible for hospice. See section on hospice eligibility.

When should a decision about entering a hospice program be made and who should make it?
At any time during a life-limiting illness, it’s appropriate to discuss all of a patient’s care options, including hospice. By law the decision belongs to the patient. Most hospices accept patients who have a life-expectancy of six months or less and who are referred by their personal physician.

Should I wait for our physician to raise the possibility of hospice, or should I raise it first?
The patient and family should feel free to discuss hospice care at any time with their physician, other health care professionals, clergy or friends.

Can a hospice patient who shows signs of recovery be returned to regular medical treatment?
Certainly. If the patient’s condition improves and the disease seems to be in remission, patients can be discharged from hospice and return to aggressive therapy or go on about their daily life. If the discharged patient should later need to return to hospice care, Medicare and most private insurance will allow additional coverage for this purpose.

What does the hospice admission process involve?
One of the first things the hospice program will do is contact the patient’s physician to make sure he or she agrees that hospice care is appropriate for this patient at this time. (Most hospices have medical staff available to help patients who have no physician.) The patient will be asked to sign consent and insurance forms. These are similar to the forms patients sign when they enter a hospital. The form Medicare patients sign also tells how electing the Medicare hospice benefit affects other Medicare coverage.

Is there any special equipment or changes I have to make in my home before hospice care begins?
Your hospice provider will assess your needs, recommend any equipment, and help make arrangements to obtain any necessary equipment. Often the need for equipment is minimal at first and increases as the disease progresses. In general, hospice will assist in any way it can to make home care as convenient, clean and safe as possible.

How many family members or friends does it take to care for a patient at home?
There’s no set number. One of the first things a hospice team will do is to prepare an individualized care plan that will, among other things, address the amount of caregiving needed by the patient. Hospice staff visit regularly and are always accessible to answer medical questions.

Must someone be with the patient at all times?
In the early weeks of care, it’s usually not necessary for someone to be with the patient all the time. Later, however, since one of the most common fears of patients is the fear of dying alone, hospice generally recommends someone be there continuously. While family and friends do deliver most of the care, hospices may have volunteers to assist with errands and to provide a break and time away for primary caregivers.

What specific assistance does hospice provide home-based patients?
Hospice patients are cared for by a team consisting of a physician, a nurse, social workers, counselors, home health aides, clergy, therapists, and volunteers. Each one provides assistance based on his or her own area of expertise. In addition, hospices provide medications, supplies, equipment, and other services related to the terminal illness.

Does hospice provide care 24 hours a day, 7 days a week?
Hospice staff is on call for emergencies 24 hours a day. Hospice care does not include a nurse in the home 24/7. If you require more care than can be provided in the home, some hospices have their own inpatient facilities. Most communities have nursing homes, inpatient residential centers and hospitals with hospice care options.

Does hospice do anything to make death come sooner?
Hospice neither hastens nor postpones dying. Just as doctors and midwives lend support and expertise during the time of child birth, hospice provides its presence and specialized knowledge during the dying process.

Is caring for the patient at home the only place hospice care can be delivered?
No. Hospice patients receive care in their personal residences, nursing homes, hospital hospice units and inpatient hospice centers.

How does hospice “manage pain”?
Hospice believes that emotional and spiritual pain are just as real and in need of attention as physical pain, so it can address each. Hospice nurses and doctors are up to date on the latest medications and devices for pain and symptom relief. In addition, physical and occupational therapists can assist patients to be as mobile and self sufficient as they wish, and they are sometimes joined by specialists schooled in music therapy, art therapy, massage and diet counseling. Finally, various counselors, including clergy, are available to assist family members as well as patients.

What is hospice’s success rate in battling pain?
Very high. Using some combination of medications, counseling and therapies, most patients can attain a level of comfort they consider acceptable.

Will medications prevent the patient from being able to talk or know what’s happening?
Usually not. It is the goal of hospice to have the patient as pain free and alert as possible. By constantly consulting with the patient, hospices have been very successful in reaching this goal.

Is hospice affiliated with any religious organization?
No. While some churches and religious groups have started hospices (sometimes in connection with their hospitals), these hospices serve a broad community and do not require patients to adhere to any particular set of beliefs.

Is hospice care covered by insurance?
Hospice coverage is widely available. It is provided by Medicare nationwide, by Medicaid in 47 states, and by most private insurance providers. To be sure of coverage, families should, of course, check with their employer or health insurance provider.

If the patient is eligible for Medicare, will there be any additional expense to be paid?
The Medicare Hospice Benefit covers the full scope of medical and support services for a life-limiting illness. Hospice care also supports the family and loved ones of the person through a variety of services. This benefit covers almost all aspects of hospice care with little expense to the patient or family.

If the patient is not covered by Medicare or any other health insurance, will hospice still provide care?
The first thing hospice will do is assist families in finding out whether the patient is eligible for any coverage they may not be aware of. Barring this, some hospices will provide for anyone who cannot pay using money raised from the community or from memorial or foundation gifts.

Does hospice provide any help to the family after the patient dies?
Most hospices provide continuing contact and support for caregivers for at least a year following the death of a loved one. Many hospices also sponsor bereavement groups and support for anyone in the community who has experienced a death of a family member, a friend, or similar losses.

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